Scholarships will be awarded on a first-come, first-served, as-needed basis . The application deadline is Aug. 28 at 3 p.m. CDT. Kidney Disease, Kidney Transplant, Urologic Disease. A membership scholarship to the turner Syndrome Society for women diagnosed with Turner Syndrome. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Program provides a one-time scholarship of up to $5000 to individuals living with epilepsy, their family members and caregivers. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. Program awards scholarships to women diagnosed with hemophilia or von Willebrand disease pursuing higher education. Scholarship assistance solely to Out Black lesbians over the age of 50 attending any technical, undergraduate or graduate school located in the United States. Our organization is run 100% by volunteers and 100% of the money we raise is used to assist students or brain tumor families during the most difficult time in their lives. Program offers a scholarship for deserving students with a disability who are pursuing undergraduate/graduate studies. Communication Disorders, Speech Impairment. A scholarship for students with a diagnosis of Bipolar Disorder who are currently in treatment. Provides scholarships to individuals with traumatic spinal cord injuries. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). For link problems or other technical problems, send an email to $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. It's part of an effort to shine a light on important but uncommon diseases in recognition of Rare Disease Day, which takes place annually on the last day of February. On Feb. 28, the top of Wells Fargo Tower in downtown Roanoke will be illuminated with a show of pink, green, purple, and blue. Childhood Cancer, Child with a parent or sibling who has or had cancer. Program provides scholarships to assist people living with cystic fibrosis and those students who are the children of parents with cystic fibrosis (living or deceased) who are pursuing undergraduate and graduate degrees. Special Needs, Cognitive Disability, Physical Disability. Provides a one-time scholarship for cancer patients/survivors attending college. A scholarship for a disabled student, either a graduating high school senior accepted into an accredited school or an undergraduate student. Program awards scholarships of $1000 to fourth year undergraduate and graduate students who have a disability and are pursuing a higher education. An educational scholarship for disabled service members and honorably discharged Gulf War veterans, or a spouse of a deceased service member and honorably discharged Gulf War veterans. $3000 scholarships to students with autism enrolled in or attending a two- or four-year undergraduate college. $3,000 scholarship to an ROTC student in the Air Force option who is attending a university located in the AFCEA Mid-South Region of the United States, including Louisiana, Mississippi, Alabama, and northwest panhandle of Florida. Military related, Military wounded, Disabled - Veteran. The #RAREis Scholarship Fund was established in 2020 to help adults with rare diseases to pursue their dreams through education. by March 15, 2023 - Scholarship Application Window Opens. Research & Scholarship. Program provides two (2) scholarships to students who are blind or visually impaired pursuing higher education in the field of engineering or in computer, physical, or life sciences. Program awards scholarships to men and women with hemophilia and an inhibitor seeking higher education. Program awards scholarships to high school seniors with disabilities pursuing higher education. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. Program provides scholarship to an individual living with vision loss or blindness attending graduate school. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Programs are listed in alphabetical order by program name. Disability Requiring Assistive Technology, Mobility Disability, Kellys Angels aims to restore fun and laughter to the lives of children who have lost a parent, primary caregiver or sibling to cancer, by providing grants for the activity of the childs choosing, Cancer - All in a loved one, Parent, Family Member, Loved One With Cancer, Terminal Illnesses. #RAREis Scholarship Fund Apply before: 04/22/2022 # of Awards: 53 Amount: $5,000 Medexus B More Scholarship Program Apply before: 04/28/2022 # of Awards: 20 Amount: THE INFUCARE RX HEMOPHILIA AND BLEEDING DISORDERS SCHOLARSHIP Apply before: 05/01/2022 # of Awards: 1 Amount: Lawrence Madeiros Scholarship Apply before: 05/01/2022 # of Awards: 7 Fund awards annual scholarships to help improve the quality of life for those affected by Leukemia/Lymphoma. Program offers scholarships to those affected by inherited bleeding disorders pursuing higher education. Program offers scholarships to adults with ASD who want to pursue a post-secondary education. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Provides scholarships to incoming freshman with type 1 diabetes who are US citizens or permanent residents seeking education at an accredited college, four year university, trade school or technical school. Child with a parent or sibling who has or had cancer. Program provides competitive internships to students with apparent and non-apparent disabilities studying science, engineering, mathematics, computer science and some fields of business. Program awards scholarship to select undergraduate students who have experienced the devastating loss of a parent or caregiver to suicide. Scholarships awarded to two students with cystic fibrosis who are pursuing a career in the fine arts, graphics, music, singing, photography, filmmaking, writing, poetry, dance, theater, and other performance arts. 7/13/2020 10:57:33 AM . The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . The application deadline is August 28 at 3 p.m. CT. Program provides scholarships to students with sickle cell disease who are pursuing higher education. A scholarship to help individuals with the financial funds to attend Indian Trails Camp. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. An educational scholarship for women diagnosed with Turner Syndrome and who are current members of the Turner Syndrome Society of the United States. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. This scholarship is for young women pursuing a STEM major. Blindness in family member, Military wounded, Children with a parent wounded, disabled or killed in military service, A scholarships is awarded to a spouse, dependent child or grandchild of a blinded veteran or an Active Duty member of the. Program offers scholarships to individuals with disabilities pursuing higher education. Provides scholarships to high school seniors living with a chronic disorder and continuing their education at a college or university. Provides merit-based scholarships to students who are deaf or hard-of-hearing. Cancers, Ewing's Sarcoma, Childhood Cancer. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Program provides scholarships to further educational opportunities for children with cancer accepted to accredited collegiate studies. Program awards a scholarship to a blind or visually impaired female undergraduate student studying music. Rare Diseases . Provides scholarships to children who have or have battled a pediatric cancer, and their siblings. Courtney is on the left, while Dr. Li is on the right. Awards two to three individuals with neurological disabilities, or the child of that person, for post high school education yearly (once a year). Scholarship program to sponsor two students ages 12 to 18 years of age with visual impairment to attend the SCIVIS Space Camp with a fully paid tuition. Coronavirus disease 2019 (COVID-19) is an emerging infectious disease caused by a newly discovered coronavirus that has reached pandemic proportions impacting millions globally. Scholarship awards 3 students an individual prize of $3000 to full-time college students diagnosed with low vision. Program offers scholarships for individuals with disabilities for the purpose of paying academic expenses for an aviation career. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Horizon Therapeutics is not responsible for content or availability of third-party sites. Among the many new orphan treatments in 2020, several are particularly noteworthy, including a new drug to treat certain people with Hutchinson-Gilford Progeria Syndrome and . Addiction, Alcohol dependence, Chemical Dependency or Substance Abuse. Program offers scholarships to graduating seniors who have/had alopecia. Awards scholarships to students diagnosed with Hemophilia, Von Willebrand disease or other bleeding disorder. This list includes both the main, and any alternate names for each disease. National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). Program provides scholarships to full-time students who have lost a parent. Chronic, Serious or Life Threatening Illnesses. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. Program provides scholarships to students who are diagnosed with colitis, Crohns, IBS, or any chronic medical issue. Program provides a financial award of up to $1000 annually to a high school senior with a language-related learning difference pursuing a career in the visual arts field. that will help to offset the cost of virtually attending NORD's Rare Diseases & Orphan Products Breakthrough Summit. Scholarship is for United States students who are for impacted by a hystiocytic disorder. Program provides financial assistance to help students affected by behavioral health issues move forward in their education. A scholarship to help with finances needed to attend any of the Adaptive Sports Center programs. This site is strictly a news and information website about the disease. #RAREis Scholarship Fund The program is currently closed. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. 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